The seeking help is not so easy at times. The syndrome I have ( MEN ) is not known to have breast cancer associated with it. I do possess a CHEK 2 mutation that is known to cause cancer. I have had colon cancer already. This puts me at the forefront for suspicion of breast cancer.
It’s nearly impossible to get a doc to order a mammogram & when one did the radiologist over rode him and canceled it. To them it’s more important to not violate Medicare rules. All this despite the NCCN Guidelines that state the condition should have yearly mammos.
I have written my sister about this as there is a 50% chance of her getting the same genetic disease and included a letter to her doctor for her to carry.
She is displaying symptoms now & choosing to ignore them. I am concerned she is failing to grasp the issue.
The need to stay on these health issues is paramount. TAX, I hope your docs are more concerned than the ones I have seen in the past. Regretable news re you sister & the emotional fires this light in your life are very draining for you. Stay strong & my prayers are with you.
Thanks:
I know that you'll understand this, but here is the lates I sent to the doc.:
On the Maternal side:
One of my cousins.
Invasive carcinoma with mixed ductal and lobular features, ER+, HER2-, lymph node 0+ Treatment consisted of lumpectomy followed by 20 sessions of radiation, no chemotherapy required, currently on an aromatase inhibitor for 5+ years.
My Aunt
Waldenström macroglobulinemia and she was diagnosed in the spring of 2001, so she would have been 72 when diagnosed. She died in Feb. 2025.
Grandfather had lung cancer, a smoker aggravated by Mustard gassing in WWI, he died in 1959, was born in 1887, so died at 72, no idea when diagnosed.
Sister diagnosed with a breast cancer March 2026. 6x4 cm, upper right lymph node area. Was felt for approx. 4 years, thought of as a cyst. (The readings from my cousin and sister are near identical.
Mother: Passed in March 1996 from stroke aggravated by emphysema and decades of smoking.
Paternal side:
Father and grandfather passed after strokes.
Father died in 2004 at 79.
Grandfather passed in 1976, age unknown. Poss. upper 70's.
Grandmother died from renal failure also late 70's.
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