Author Topic: Kleinfelter questions  (Read 5126 times)

Offline nicktheory

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Running down the list of symptoms on the home page, I probably have, to some degree, about 90 percent of them, save for the fertility issue and the small balls. Mine are smaller than averge but not tiny (or less than, say 1 inch.) Does this rule me out, the fertility and near normal sized balls? Is it black and white? Could you have it partially? What test is done and by whom? An endocrinologist? Simple blood test?

Offline Grandpa Bambu

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Nick....

I'm in the same boat as you my friend. I'm about a 90% match to the symptom list. I have very small balls  :-/   (that's not easy to say on a public forum let me tell U.... :-[ ) and have never gotten a girl preggers. I'm purddy sure that I'm shoot'n blanks. Oh well, doesn't matter now anyhow. I'm 42, married, and the wife had her tubes tied many moons ago. The chances of me having kids now are slim to none.

My Step-Son has Kleinfelter Syndrome. He's quite the character let me tell ya!

Anyways, yeah, like thejuice mentioned, talk to your GP Dude. I'm sure he/she could arrange the tests for you. On the Kleinfelter Page it says that one guy at 21 years was in for a vasectomy and blood tests revealed XXY. So.... by the sounds of it, yes, a simple blood test would do the trick.

While I was reading the Kleinfelter Page, I saw this....

"at age 22 - was refused Armed forces entry, due to small testes and was presumed homosexual[/color]".

OMG! That's insane! Assuming a guys sexual orientation by size of his balls? I got small balls.... let me tell you, I am by no means a 'Homo'.....

Fuking military a$$holes..... Bastards.....  >:(

Could U imagine... signing up for the military and the recruting officer telling ya that you are a 'f@g' cuz U got small boyz.

"You're a f@g, next...."  Ouch! That would hurt.....  :-/


John.
 
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Offline nicktheory

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Something tells me I might have what is called the KS mosaic, a partial case. I can pregnate, have very high verbal skills, I'm 5 10, but I do have the long arms, wide hips, fat development and a few of the other issues, including gyno that might be KS. I wonder, though, how many of those symptoms are also symptoms of hypogonadism.

Offline nicktheory

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And regarding the small balls, how smallis very small? Mine are like 2", maybe a little larger, long. Is that KS "very small size"?

Offline Grandpa Bambu

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And regarding the small balls, how smallis very small? Mine are like 2", maybe a little larger, long. Is that KS "very small size"?

Mine are about 1" and 1/2".

John.

DrBermant

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Running down the list of symptoms on the home page, I probably have, to some degree, about 90 percent of them, save for the fertility issue and the small balls. Mine are smaller than averge but not tiny (or less than, say 1 inch.) Does this rule me out, the fertility and near normal sized balls? Is it black and white? Could you have it partially? What test is done and by whom? An endocrinologist? Simple blood test?

The best place to evaluate possible Klinefelter's Syndrome is with an endocrinogist.  You can find many Klinefelter's Syndrome Resources Here.  You can also listen to a video about how a patient used the internet to help learn and then get doctors to evaluate his Klinefelter's Syndrome here.  That movie is really amazing.


Hope this helps,

Michael Bermant, MD
Learn More About Gynecomastia and Chest Sculpture

Offline Round_1

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the audio on the video is bad for me.. cant realy understand it too well
"I've noticed that many people seem to fall into 3 categories; 1) people who have true gyno and have suffered psychological from it.  2) people who suffer from psuedo-gyno (the majority) and suffered"

Offline Hypo-is-here

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Just to concur with the correct comments of Dr Bermant.

If someone thinks they may have Klinefelter Syndrome then they should have a consultation with an endocrinologist who specialisies/has an interest in reproductive endocrinology.

A gp is not remotely qualified or able to diagnose such a condition.

If anyone here needs help in obtaining the contact details for endocrinologists just pm me your city and state and I will get you a list of the best people in your area.




Offline nicktheory

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Hypo, if you have same names of endos in Boca Raton, FL, it would be appreciated ...

Offline nicktheory

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Grandpa, are you KS or KS mosaic?

Offline Hypo-is-here

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Hypo, if you have same names of endos in Boca Raton, FL, it would be appreciated ...


ALL those below are listed by the AACE (American Association of Clinical Endocrinology) and ALL have stated an interest in reproductive endocrinology which is the relevant field.

If I were you I would pick out a few names listed and phone them and try to speak with them regarding your concerns and then pick out the one you feel most comfortable with and make a consultation.

In doing so pass on the details to your general physician.

If at any point you do not feel happy- go to the list and procure the services of someone that you do feel happy with.

I am in the UK and have hypogonadism and gynecomastia- which is why I am trying to help you as you are a fellow sufferer.

I do not have anything to do with these people being thousands of miles away and I cannot vouch for any of them, which is why you must use your own judgement.

Neverthless I hope this helps and wish you the very best!

Motaz Agabani, MD, FACE
2650 Bahia Vista St Ste 104
Sarasota, FL 34239-2611
Directions to Office
Phone: (941) 330-8355
Interest Areas:
   Diabetes Mellitus
   Disease of Pregnancy
   General Endocrinology and Metabolism
   Lipid Disorders
   Nutrition
   Reproductive Endocrinology
   Thyroid Dysfunction
   Other
   PCOS
   
Denise Rachele Armellini, MD
1865 Brickell Ave.
Apt. A-1612
Miami, FL 33129
Directions to Office
Phone: (305)677 2009
Interest Areas:
   Ectopic Endocrine Syndromes
   Lipid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   
Salwa Salama Ayad, MD
7494 Scarlet Ibis
jacksonville, FL 32256
Directions to Office
Phone: (507) 281-1327
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Lipid Disorders
   Nutrition
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Mohammad M. Baig, MD, FACE
3226 Cove Bend Dr.
Tampa, FL 33613-2752
Directions to Office
Phone: (813) 977-0778
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Ectopic Endocrine Syndromes
   General Endocrinology and Metabolism
   Growth Disorders/Growth Hormone
   Hypertension
   Lipid Disorders
   Metabolic Bone Disorders
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Other
   Osteoporosis
   
Judy Barzey, MD, FACE
7401 N. University Drive Suite 105
Pamarac, FL 33321
Directions to Office
Phone: (954) 722-0130
Interest Areas:
   Reproductive Endocrinology
   
Amy Bui, MD
P.O. Box 100226
Gainesville, FL 32610
Directions to Office
Phone: (352) 392-2729
Interest Areas:
   Adrenal Disorders
   General Endocrinology and Metabolism
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   
Gary Williams DeVane, MD, FACE
3435 Pinehurst Ave
Orlando, FL 32804-4049
Directions to Office
Phone: (407) 740-0909
Interest Areas:
   Diabetes Mellitus
   General Endocrinology and Metabolism
   Pituitary Disorders
   Reproductive Endocrinology
   Other
   Osteoporosis
   
Allan L. Fedosky, MD
Access Medical Group, P.A.
PO Box 5008
Niceville, FL 32578-5008
Directions to Office
Phone: (850) 897-1824
Interest Areas:
   Adrenal Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   
Renee Freedman, MD
1500 NW 10th Avenue
Suite 205
Boca Raton, FL 33486
Directions to Office
Phone: 561-391-1085
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Obesity
   Reproductive Endocrinology
   Other
   
Neil F. Goodman, MD, FACE
9150 SW 87th Ave Ste 210
Miami, FL 33176-2313
Directions to Office
Phone: (305) 595-6855
Interest Areas:
   Reproductive Endocrinology
   PCOS

John J. Janick, MD, FACP, FACE
4369 Tamiami Trl
Port Charlotte, FL 33980-2118
Directions to Office
Phone: (941) 629-3366
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Disease of Pregnancy
   Ectopic Endocrine Syndromes
   General Endocrinology and Metabolism
   Geriatrics
   Growth Disorders/Growth Hormone
   Hypertension
   Lipid Disorders
   Metabolic Bone Disorders
   Nutrition
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   PCOS
   
Edwin N. Lee, MD, FACE
601 1st St N
Winter Haven, FL 33881-4129
Directions to Office
Phone: (863) 298-3422
Interest Areas:
   Metabolic Bone Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Other
   
Lusiana Loman, MD, FACE
14100 Fivay Rd Ste 250
Hudson, FL 34667-7151
Directions to Office
Phone: (727) 849-1591
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Ectopic Endocrine Syndromes
   General Endocrinology and Metabolism
   Growth Disorders/Growth Hormone
   Lipid Disorders
   Metabolic Bone Disorders
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Jennifer Byrne Marks, MD, FACP, FACE
PO Box 16960
D-110
Miami, FL 33101-6960
Directions to Office
Phone: (305) 243-6433
Interest Areas:
   Diabetes Mellitus
   Hypertension
   Reproductive Endocrinology
   PCOS
   
Benito Alberto Marranzini, MD
Eps #X-17293
7801 NW 37th St
Miami, FL 33166-6559
Directions to Office
Phone: (809) 541-3824
Interest Areas:
   Diabetes Mellitus
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Govindan P. Nair, MD
4820 5th Ave N
Saint Petersburg, FL 33713-7218
Directions to Office
Phone: (727) 321-6768
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   General Endocrinology and Metabolism
   Hypertension
   Lipid Disorders
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   PCOS
   
Jesus B. Perez, MD, FACE
Intercoastal Medical Group Inc. Sec Endoc.
30033 Cattlemen Dr. Suite 210
Sarasota, FL 34232
Directions to Office
Phone: (941) 371-3337
Interest Areas:
   Diabetes Mellitus
   Metabolic Bone Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Other
   PCOS
   
Julio C. Pita, Jr., MD
3659 S Miami Ave Ste 6008
Miami, FL 33133-4225
Directions to Office
Phone: (305) 854-5432
Interest Areas:
   Diabetes Mellitus
   General Endocrinology and Metabolism
   Growth Disorders/Growth Hormone
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Luz Marina Prieto, MD
1450 NW 10 Ave
Miami, FL 33136
Directions to Office
Phone: (305) 243-7316
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Andrew J. Scoma, MD, FACE
1925 Mizell Ave Ste 201
Winter Park, FL 32792-4155
Directions to Office
Phone: (407) 628-0448
Interest Areas:
   Diabetes Mellitus
   General Endocrinology and Metabolism
   Hypertension
   Reproductive Endocrinology
   Thyroid Dysfunction
   PCOS

Leonard Mark Thaler, MD, FACE
20450 West Dixie Highway
Aventura, FL 33180
Directions to Office
Phone: (305) 937-3000
Interest Areas:
   Adrenal Disorders
   General Endocrinology and Metabolism
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Osteoporosis
   
Mark P. Trolice, MD
5391 Brick Court Suite 130
Winter Park, FL 32792-9411
Directions to Office
Phone: (407) 672-1106
Interest Areas:
   Reproductive Endocrinology
   Other
   PCOS
   
Arnold Vera, MD, MSc, CDE, FACE
873 Sterthaus Ave Ste 303
Ormond Beach, FL 32174-5154
Directions to Office
Phone: (386) 677-2929
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   General Endocrinology and Metabolism
   Hypertension
   Lipid Disorders
   Metabolic Bone Disorders
   Nutrition
   Parathyroid Disorders
   Pituitary Disorders
   Reproductive Endocrinology
   Thyroid Dysfunction
   Other
   Osteoporosis
   PCOS
   
Claudia Katherine Vogel, MD
PO Box 016960 (D-110)
Miami, FL 33101
Directions to Office
Phone: (305) 243-6433
Interest Areas:
   Adrenal Disorders
   Diabetes Mellitus
   Obesity
   Reproductive Endocrinology
   Thyroid Dysfunction

Offline nicktheory

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Hypo, thanks for the extensive list. I'm curious: Is it common for a woman M.D. to examine a man for KS and hypogonadism? Anyone have any experince with this? Pros and cons?

Offline Grandpa Bambu

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Grandpa, are you KS or KS mosaic?

nicktheory

Not sure there Dude. I'm not even sure if I'm KS at all. Never been tested.

John.

Offline Grandpa Bambu

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Hypo, thanks for the extensive list. I'm curious: Is it common for a woman M.D. to examine a man for KS and hypogonadism? Anyone have any experince with this? Pros and cons?

Would it bother you if a Woman MD examined you for KS and Hypogonadism?

John.

Offline Grandpa Bambu

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the audio on the video is bad for me.. cant realy understand it too well

Same here.... audio was garbled...   >:(

John.


 

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